To My Fellow PHighters - World Pulmonay Hypertension Day 2016

It's OK to be scared,
You're constantly looking at a killer know only to a few.
It's OK to be mad,
Pulmonary Hypertension has robbed you of what you wanted to do.
It's OK to be sad,
Because PH makes life harder to get through.

Simple things become our glories,
   which to some will not be true.
Would they change their mind if they knew what it's like
   to have to take life at a pace that is steady?
Because we know how hard it can become to breathe.

I have heard you tell stories
   of how people don't believe you,
Friends and strangers alike.
As if there isn't enough already
   to make you seethe!

I'm not saying people without PH are not struggling,
But do they know what we are juggling?
   that our medications can be so muddling?
   what it's like to need constant meddling?
Because PH is relentless,
   keeping us restless.

Whatever people say, remember that
"Courage is not the absence of fear
   but rather the judgement that
   something is more important than fear"